NAPRTCS was founded in 1987.
- The initial operational objective was to obtain the voluntary participation of all kidney transplant centers in North America in which more than four pediatric patients received kidney allografts annually.
- The initial scientific objective included capture of information about current practice and trends in immunosuppressive therapy with an ultimate goal of improving the care of pediatric renal allograft recipients in North America.
- By 1994, NAPRTCS had expanded the registry to studies for all phases of treatment for end stage renal disease in children, including chronic kidney disease, dialysis, and kidney transplantation.
- NAPRTCS expanded its scope by developing a multi-center clinical trials network in 1994.
- In 2009 NAPRTCS leveraged the power of the registries to provide Benchmarking Tools for pediatric CKD and ESRD care.
- The Children’s Hospital Association launched the Standardizing Care to Improve Outcomes in Pediatric End-Stage Renal Disease (SCOPE) Collaborative in 2011. This quality transformation project was developed and implemented through a partnership with NAPRTCS.
NAPRTCS Board of Directors
Alicia Neu, MD – President
Director, Division of Pediatric Nephrology
Medical Director Pediatric Dialysis and Kidney Transplantation
The Bloomberg Children’s Center at The Johns Hopkins Hospital
Professor, Pediatrics
The Johns Hopkins University School of Medicine
Bradley Warady, MD – Vice President
Director, Division of Nephrology
Director, Dialysis and Transplantation
Children’s Mercy Kansas City
Professor of Pediatrics
University of Missouri-Kansas City School of Medicine
Stuart Goldstein, MD – Secretary/Treasurer
Director, Center for Acute Care Nephrology
Cincinnati Children’s Hospital and Medical Center
Professor of Pediatrics
University of Cincinnati College of Medicine
Tom Blydt-Hansen, MD, FRCPC
Director, Multi-Organ Transplant Program
British Columbia Children’s Hospital
Associate Professor of Pediatrics
University of British Columbia
Vikas Dharnidharka, MD, MPH
Professor and Director
Division of Pediatric Nephrology, Hypertension and Pheresis
Washington University in St. Louis & St. Louis Children’s Hospital
Jodi Smith, MD
Medical Director, Kidney Transplant
Seattle Children’s Hospital
Associate Professor, Pediatrics
Adjunct Associate Professor, Epidemiology
University of Washington School of Medicine
Michael Somers, MD
Associate Chief, Division of Nephrology
Boston Children’s Hospital
Associate Professor, Pediatrics
Harvard Medical School