Registries

Bedside reports:

The NAPRTCS Bedside reports use the power of the NAPRTCS Registries to provide an educational and communication tool for those involved in the care of children with chronic kidney disease.  The reports consist of modifiable graphs displaying important outcomes such a transplant graft survival, time to end-stage kidney disease and hypertension. To access the bedside reports, please log-in to your account and navigate to Data Reports.

Benchmarking:

The NAPRTCS Benchmarking Project provides center specific outcomes for transplant, dialysis, and chronic kidney disease to participating centers, compared to a comparable cohort from the registries. Pediatric specific metrics such as growth, immunization, and school attendance, are included. The reports are available in real-time and modifiable to allow an in-depth assessment of important outcome and process measures. To learn more about the Benchmarking Project, navigate to BenchmarkingTo access your center’s benchmarking reports, please log-in to your account and navigate to Data Reports.

Special Studies:

Special Studies are analyses conducted by investigators at participating centers using the robust data in of the NAPRTCS registries: CKD, Dialysis and/or Transplant. Call for Special Studies applications occurs once per year. Investigators can receive assistance in the study design development as part of the NAPRTCS Mentoring Program. Data analysis is performed by NAPRTCS Data Coordinating Center, the EMMES Corporation. To view previous special studies, navigate to Special Studies. To learn more about the Special Studies application process contact Sara Boynton.

Registry Reports: 

The NAPRTCS Registry reports are high level reports performed periodically from each of the 3 NAPRTCS Registries.  They provide a static report of the robust data from the registries, including patient demographics, clinical care characteristics (eg transplant immunosuppression) and outcomes. The Registry Reports also provide changes in demographics, clinical care and outcomes over the 30 year history of NAPRTCS.